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Pernicious Anemia!

Updated: 6 days ago

A unique story from a member of the community living with Pernicious Anemia! 💜

*Readers are warned that the content described in this story contains medical information and may be upsetting to some people. Please read with caution. The content has been supplied by a person living with Pernicious Anemia. We advise discretion and highly recommend you do not self-diagnose and seek advice from a medical professional.


The common symptoms of Pernicious Anemia
Pernicious Anemia Symptoms

My life with Pernicious Anemia.

I was born in Eastern Europe late 1970s and probably (as my doctor of 20 years says) was born with Pernicious Anemia.

As a young child, I always remember being low on iron and having to have iron and B12 injections, quite often. (I have childhood trauma from the iron injections).

In my twenties, there was a period of around 5-6 years where I did not receive any treatment for iron or B12 (moving to a new country, settling in, starting a family, running around after children, housework, work etc. I was exhausted, and my neuropathy thought it was "just a phase or overload" of being an adult, parent, mother or maybe low on iron.

Well, I didn't know anything different in the early years of 2000 when the internet was painstakingly slow and useless, I had no choice but to believe my doctor, I feel very lucky and forever grateful to have him as a doctor since we moved to Perth, Australia.

I had never been properly checked for Pernicious Anemia until I became very unwell after giving birth to my second child. I started losing my memory, like an early onset of dementia, having migraines with vision impairments, and heart palpitations, and felt like I was going to die in my sleep, along with the very much known long list of Pernicious Anemia symptoms.

After countless tests, backwards and forwards, I finally got diagnosed at the age of 26.

Now, after many years, with "some" nerve damage I am still doing my B12 shots every month and still learning, recovering and living with PA.

Always eager to learn more, share my general life experiences, and SPREAD as much possible awareness about Pernicious Anemia.

When I think about it, the scenario could have been far worse and I consider myself to be very lucky to be able to enjoy life.

Love Maya ❤️

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Alexa Young, CA

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